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Modern Estate Planning Blog

Elder Law & Special Needs Planning

Medical Decision-Making for Individuals With Chronic Disease

September 1, 2025

Living with a chronic health condition often means managing treatments, navigating the health care system, and making difficult choices about future care. For many people in Sacramento, the biggest worry is what will happen if they are no longer able to make or communicate those decisions.

At Chubb Law Firm PC, we believe that peace of mind comes from planning ahead. Documents such as advance health care directives, health care powers of attorney, and HIPAA authorizations give individuals the ability to guide their care and ensure their voices are heard. This blog explains why these tools matter and how they can protect both patients and families.

Living with a chronic health condition often means navigating a complex health care system, managing ongoing treatments, and making difficult medical decisions. For many, the uncertainty of how their health may progress raises important questions: What will happen if I can’t make my own health care choices? Who will speak for me if I become unable to express my wishes?

The answers lie in legal documents such as advance health care directives, health care powers of attorney, and HIPAA authorizations. These tools allow people to maintain control over their care and ensure their voices are heard, even if they cannot advocate for themselves.

Why These Documents Matter

Chronic health conditions such as kidney disease, diabetes, or cancer can sometimes lead to sudden complications or long-term changes in decision-making ability. Planning ahead reduces stress for patients and families by providing clarity and direction in critical moments.

Without formal documentation stating a patient’s wishes, medical professionals are generally obligated to provide life-sustaining treatment in emergencies. Family members may face a similar struggle with making difficult choices, sometimes leading to disagreements or legal disputes.

Advance health care planning empowers individuals to take charge of their health care journey and removes the guesswork for loved ones and medical professionals.

Advance Directive

An advance health care directive, sometimes called a living will, is a written document that outlines your preferences for medical care if you become unable to communicate. It can address issues such as:

  • Life-sustaining treatment preferences. Do you want to be placed on a ventilator if you stop breathing?
  • Artificial nutrition and hydration. Would you want to use feeding tubes or IV fluids if you become unable to eat or drink?
  • Resuscitation orders. Do you want CPR performed if your heart stops?
  • Pain management. Should comfort and quality of life take priority over aggressive treatment?

Advance directive documents can be as detailed or as broad as you want. You can also update them as your health condition or beliefs change.

Health Care Power of Attorney

A health care power of attorney (POA), sometimes called a medical POA or health care proxy, designates a trusted person, often a spouse, family member, or close friend, to make medical decisions on your behalf if you become unable to make decisions or cannot express your wishes.

The chosen representative, known as a health care agent or proxy, can speak with doctors and other providers about treatment options. They can also access medical records to make informed decisions. An agent can consent to or refuse medical treatments based on your expressed wishes and advocate for your preferences in hospitals or other care settings.

Unlike an advance directive, which provides specific instructions, a medical POA allows flexibility. This is especially helpful when situations arise that aren’t clearly outlined in an advance directive.

HIPAA Authorization Form

Advance directives and health care powers of attorney focus on decision-making. The Health Insurance Portability and Accountability Act (HIPAA) form focuses on protecting your medical information.

Without written authorization, health care providers may be unable to share details about diagnoses, treatments, or test results, even with close family members. A HIPAA authorization form allows you to designate specific people, such as a health care proxy, spouse, or children, who can access your medical records.

Having a HIPAA authorization form ensures that the people you trust have the information they need to make informed health care decisions on your behalf.

Putting These Documents in Action

Ensure that your health care documents reflect your wishes and will function as you intend by:

  • Reflecting on your values. Consider what quality of life means to you and what treatment decisions you would or wouldn’t make.
  • Talking with your loved ones. Explain your preferences with family so they understand your choices.
  • Choosing your health care proxy carefully. Pick someone who understands your values, can handle stress, will advocate firmly on your behalf, and has the emotional strength to make hard decisions.
  • Completing all applicable health care forms. Each state has its own legal guidelines for advance directives, POAs, and HIPAA forms.
  • Reviewing your health care documents with professionals. Discuss your documents with your doctor and an attorney to ensure they are clear and valid.
  • Sharing copies of your signed documents. Give signed copies of these documents to your proxy (agent), family members, and doctors. If possible, upload them into your electronic medical record.
  • Reviewing and updating these documents regularly. Revisit your documents every few years or after major health changes.

Peace of Mind Through Planning

For individuals living with chronic illnesses, uncertainty about the future can be daunting. Taking proactive steps to document health care wishes can provide reassurance that your values will guide your medical care, even if you cannot speak for yourself.

By planning ahead, you not only protect your autonomy but also provide your loved ones with a clear path forward, thus reducing stress, preventing conflict, and ensuring that your medical care reflects what matters most to you.

For those living with chronic illness, uncertainty about the future can be overwhelming. Putting clear health care documents in place allows your wishes to be honored and relieves your loved ones from making difficult choices on their own.

If you are in the greater Sacramento area and want guidance on creating advance directives, health care powers of attorney, or HIPAA authorizations, Chubb Law Firm PC can help. Call us at (916) 241-9661 to schedule a Discovery Meeting.

For additional reading on topics related to health care planning, check out the following articles:

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CLIENT Story

I totally see the difference between your service and your typical legal estate planning service. The experience you mentioned where you get this big document you don’t understand and a trust that never gets funded was EXACTLY our first experience. It cost a small fortune too. Really - it is the difference between providing a legal document and providing an estate planning service.
Susan

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